So many "firsts"

We all have those "firsts" that we can remember so vividly. Our first date, first kiss, first job. Our baby's first steps, first laugh, first time eating baby food. We all go through SO many "firsts" in our lives. 

Today was FULL of firsts for me and my family. It was the first EVER Adrenal Insufficiency Awareness day in the UK. Something that is now very near and dear to my heart. That in itself was exciting enough. Then through some extra trials this week, Leonora got her g tube removed. HOLY CRAP! That day is HERE. Like, today. She is tube-less. Are you kidding me?!!? A tubie graduate. WOW!! Her first time without a feeding tube. Another first. I got to dress her today for the FIRST time without any tubes or wires. A day I felt would never come is here. Wow! She got to wear a 2 piece outfit with no onesie underneath for the first time. And you better believe she is wearing a 2 piece PJ set tonight. We are living it up. Its amazing to me to realize how "small" these "firsts" are but when you have them "taken away" how big they actually become. I will never forget that on June 6th, the first ever AI Awareness day, I got to dress my baby without worry. I am so grateful for everything we've been through. As tough as it has been, its been a learning experience for us all. 

Here is a small recap of our last few days:

The day her g-tube was places 1-9-13

The day her g-tube was removed 6-6-14

Dressing her for the first time worry free

Playing the the play room

Trooper

Mermaid kisses

Loves puzzles

Coloring with her IV in

Happy to be out of surgery

Happy tubie graduation day baby girl!! I am so proud of you!!!

Always treasure the small stuff, for they become the things that matter most. Thank you for all our love and support through this crazy journey. One chapter closed, on to the next!

Happy AI Awareness day, Happy tubie graduation, Happy wear- whatever- she- wants- now day, Happy free donut day, Happy happy mama!

 We love you all and are so blessed to have you on this ride with us!